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*Since the official language of the event is English, all the information about the conference sessions and workshops will be available only in English!

13 June 17:00-19:00 Workshop 1 - Central and Eastern European Activities (part 1)

Moderators: Dr. Iva Stoeva, Prof. Borut Peterlin, Mrs. Natasa Bijelic
13 June 17:00-19:00 Workshop 2 - Integrative Management of Rare Diseases

Moderators: Assoc. Prof. Ivan Ivanov, Prof. Elisaveta Naumova, Dr. Edmund Jessop
13 June 17:00-19:00 Workshop 3 - Access to Orphan Drugs in CEE Countries

Moderators: Mrs. Stephanie Donahoe, Assoc. Prof. Rumen Stefanov, Mrs. Tsveta Milanova
13 June 17:00-19:00 Workshop 4 - Rare Tumors

Moderators: Assoc. Prof. Asen Dudov, Dr. Aydin Dortok
17:00-17:05 Introduction and opening
Assoc. Prof. Asen Dudov, Dr. Aydin Dortok
17:05-17:25 Rare Tumours in Europe - Challenges and Solutions
Dr. Aydin Dortok
17:25-17:40 The List of Rare Cancers and its Rationale
Dr. Annalisa Trama
17:40-18:00 Gastrointestinal Stromal Tumors
Assoc. Prof. Asen Dudov
18:00-18:20 Iron Chelation Development
Assoc. Prof. Georgi Mihaylov
18:20-18:40 Acromegaly - a Review
Dr. Emil Nachev
18:40-19:00 Q & A Session
June 14 10:00-12:30 Workshop 5 - Central and Eastern European Activities (part 2)

Moderators: Prof. Grzegorz Wegrzyn, Mr. Ysbrand Poortman, Dr. Radostina Simeonova, Mrs. Celine Lewis


This conference arises from the project "4th Eastern European Conference for Rare Diseases and Orphan Drugs - Together For Integrative Approach To Rare Diseases" which has received funding from the European Union, in the framework of the Public Health Programme.
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