TOGETHER FOR INTEGRATIVE APPROACH TO RARE DISEASES
Langue: Bulgare Anglais Français Allemand Russe

Deuxième jour
(14 juin 2009)*

*Puisque la langue officielle de l'événement est l'anglais, le programme de la conférence sera publié seulement en anglais!

09:00-10:00 POSTER SESSION
Moderators: Rumen Stefanov, Domenica Taruscio, Marianna Murdjeva, Sonja van Weely
10:00-12.30 SESSION 3
Models of integrative approach in different rare diseases
Moderators: Valeria Kaleva, Sarka Vejvalkova, Alexey Sokolov

Thalassemia (click to read as PDF) - Vasili Berdoukas (Greece), Valeria Kaleva (Bulgaria)

Neuro muscular diseases (click to read as PDF) - Ysbrand Poortman (WANDA)

Prader Willy syndrome (click to read as PDF) - Uros Hladnik (Italy)

Lesch-Nyhan syndrome (click to read as PDF) - Uros Hladnik (Italy)

Chronic myeloid leukemia (click to read as PDF) - Stafan Goranov (Bulgaria), Vesselina Goranova (Bulgaria)

Epidermolysis bullosa (click to read as PDF) - Edmund Jessop (UK), Ivelina Yordanova (Bulgaria)

Primary immunodeficiencies (click to read as PDF) - Elisaveta Naumova (Bulgaria)
10:00-12.30 PARALLEL WORKSHOP:
Workshop 5 - Central and Eastern European (CEE) activities (part 2)
Moderators: Grzegorz Wegrzyn, Ysbrand Poortman, Radostina Simeonova, Celine Lewis
12:30-13:00 CLOSING REMARKS AND TAKE-HOME MESSAGES

 

Cette conférence fait partie du projet "4th Eastern European Conference for Rare Diseases and Orphan Drugs - Together For Integrative Approach To Rare Diseases", qui est financé par l'Union Européenne dans le cadre du programme de Santé Publique.
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