TOGETHER FOR INTEGRATIVE APPROACH TO RARE DISEASES

Sprache:

Zweiter Tag
(14 Juni 2009)*

*Da die offizielle Sprache der Veranstaltung Englisch ist, sind alle Informationen uber die Konferenzsitzungen und Workshops nur in Englisch verfugbar


09:00-10:00	POSTER SESSION Moderators: Rumen Stefanov, Domenica Taruscio, Marianna Murdjeva, Sonja van Weely

10:00-12.30	SESSION 3 Models of integrative approach in different rare diseases Moderators: Valeria Kaleva, Sarka Vejvalkova, Alexey Sokolov Thalassemia (click to read as PDF) - Vasili Berdoukas (Greece), Valeria Kaleva (Bulgaria) Neuro muscular diseases (click to read as PDF) - Ysbrand Poortman (WANDA) Prader Willy syndrome (click to read as PDF) - Uros Hladnik (Italy) Lesch-Nyhan syndrome (click to read as PDF) - Uros Hladnik (Italy) Chronic myeloid leukemia (click to read as PDF) - Stafan Goranov (Bulgaria), Vesselina Goranova (Bulgaria) Epidermolysis bullosa (click to read as PDF) - Edmund Jessop (UK), Ivelina Yordanova (Bulgaria) Primary immunodeficiencies (click to read as PDF) - Elisaveta Naumova (Bulgaria)

10:00-12.30	PARALLEL WORKSHOP: Workshop 5 - Central and Eastern European (CEE) activities (part 2) Moderators: Grzegorz Wegrzyn, Ysbrand Poortman, Radostina Simeonova, Celine Lewis

12:30-13:00	CLOSING REMARKS AND TAKE-HOME MESSAGES

Diese Konferenz ist ein Teil des Projektes "4th Eastern European Conference for Rare Diseases and Orphan Drugs - Together For Integrative Approach To Rare Diseases", das von der Europaischen Union in der Rahmen des Gesellschaftsgesundheitsvorsorgeprogramms finaziert ist

Zweiter Tag (14 Juni 2009)*

Zweiter Tag
(14 Juni 2009)*